Sunday, November 14, 2010



Saturday, November 13, 2010

Who doesn't love a good cup of hot soup in the winter or snuggling in a blanket in front of a good fire with a nice steaming cup of hot chocolate with those nice marshmallows in them. I know I do. I love sitting in a comfy chair and reading and I love a good pot of home made soup but most of all I realized yesterday that I love stability. When I think about the things that comfort me and allow me to heal, to think, to get perspective the one thing I know, it starts with some comfort. Sometimes small things that the smell of walking in my front door and sometimes big things like sitting watching a movie with Dean and Olivia. But the healing can start when I have something to lean on.

In my life of constant change I did not realize how much I crave comfort. You see, underlining all this whirlwind of surgeries, disappointments, frustrations and constant back and forth to the hospital you would think "Wow, she has it down". It seems like everyone else's week, we just go to the hospital. Sometimes it does become routine. But here is the reality, as long as I can prepare myself and I have the one thing that underlines it all….my nurses, then I survive. Those ladies on the floor that love me no matter what! When I had to handle life and death stuff they held my hand and my heart and helped me make it another day. When I could not take another Doctor they took the time to help me talk it through. They have loved me, cried with me and helped me walk a little straighter and stronger. So, why, oh why did God have to rock even that boat for me.

For the last week the Doctors have had this "something" about who is taking care of Liv. The Liver Doctors have written her off because according to them she is fine. If you have the chance to really look at her I would beg to differ but hey, the surgery went well. Her scar healed. She is losing blood everyday but I am sure that is just normal…UGGH. I had to draw their attention back to that point because they seemed to overlook it as they were so assured of her liver numbers. Then the pulmonologist. You never see them, they never come by, they have been just writing orders here and there and all the while…in this world of limbo Olivia and I have been at least assured of one thing, our nurses on the 6th floor. They love her. They don't judge her. They allow her to be afraid, hurt, mad, happy, and to work through so many problems that she has to face. So the idea of changing floors has been a looming dark shadow over us. Most of the fifth floor nurses are more about protocol, process, orders than the person. Of course they are nice and helpful but they are just not used to seriously ill kids. They are used to the teenagers with no parents here. Attitudes, frustrations and fighting them to follow protocol. You would think we would be a cup of fresh air.

So, last night, all of sudden we had to make the move to the 5th floor. I had prepared myself all week. I had prepared Olivia all week. But, when the time came I just fell apart. I just couldn't stop crying. I tried to hold it together but it just seemed my world was being ripped apart. I just could not figure out why I was so upset. Then it just hit me. That comfort. That stability. That kindness was gone. I would have to start over with new nurses. The struggle of having to make it all work on my own again was just ahead. The simple things and nuisances that you look for in a transplant kid is lost on this floor. My anxious thought of "what do you think" lost on a protocol than really just a Mom trying to get a thought or opinion to relieve the anxiety.

Then the big picture just loomed above me. God, "Why are you taking this away from me!"…"I just made friends that really understood where I am!" …"I am not the one always giving this time, there are people here that help me too!", " God I am so tired and weary". Dean wasn't even here to help me make the move to the fifth floor because he was home sick. I had to do it all by myself and boy that led to, " I feel like I am doing this all by myself most of the time"…(which is a silly pity party on my part and so not true but hey, there are times that you have to vent something out.) Then, as I was unpacking Sophie came to the door. Dear Sophie. And part of the picture that is bigger than my pity party came to light.

You see, Sophie's Dad left them the last time she was in the hospital. He decided he did not want to be a Dad anymore. But not just that he did not want to be a Dad, but he took the time to tell the kids that. Her Mom is in the middle of trying to start over and move to another state. Sophie is here at the hospital for the first time by herself. Even though she is fourteen, still, when you have had your Mom all the time it is hard and my stubborn attitude melted just a bit. She is two doors down. How can I not know that God moved us down to help her. And yes, comfort is nice. Walking this life is not easy but, God knew at the end of the day I could handle it. Because the picture is bigger than my comfort.

Don't get me wrong, when I get home I am making that soup, I am watching all the TV I want to and I am having a good cup of coffee and hot chocolate. You can count on that. I am even going to curl up in a chair and enjoy a good read in my fluffy housecoat. Then, I am going to cook and get ready for Thanksgiving at the King household with all the trimmings I can muster. We may have to freeze some food by the time I get through or give it away but who cares….my life is bigger than those moments of comfort.

I am called to lean on God, not nurses for my comfort. I am being called to a higher walk with God than I ever knew I could do. Because today people need to see real people living a real life with God. I love that at our church we don't call ourselves Christians but Christ Followers. Because the word Christian has become symbolized as something negative. But those that live life out as a follower of Christ just naturally draw people to them. Why? Because people need God. They need love. They need that comfort that I received from the nurses. They have emotional and spiritual needs that they can't even identify but when they feel it or see it…they know it! The sad part, it is the person going out of their way to help someone is out of the ordinary these days. It is the person caring for just a moment about someone else and not themselves that seem strange to our society anymore. The Christian walk is harder now than it has ever been because of how the morality of our culture has changed. So one person at a time. One moment of the time we are called to make a difference. Even if it costs us that one thing that means most to us. For me it was that small bit of comfort. But I know and God knows, I am strong enough to handle even losing that and like I told Olivia some child needed our room up there and they needed what we received more than we did. And down here, we will make the best of it and God will bless our time here…it will just be different.

Someday soon we will go home and I will be able to heal wrapped in the warmth and stability of my own house. My own living room, bedroom and kitchen. So I will look forward to that and not look back at what was lost but more importantly what was gained. I gained invaluable friendships. I gained love that I did not realize I needed so badly and I am learning one step at a time to trust God's design. He knows what we need and how much we can handle.

Oh, and just as I am finishing writing this the Doctor's come in to tell me that her blood problems might be related to an antibiotic she is on. Wow, they could have saved me so much worry if I had seen them yesterday. Yet again, give me a little comfort that things may not be what they appear or just trust my God to know what is ahead and just breath. Just breathing… and out…in and out…….

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